SIPS
SIPS Month 3: The Cost of Coping
Month 3 follows the path from coping to active recovery and examines how a part-time retail schedule can claim more than its paid hours.
SIPS Month 2: The long tail of recovery
Being functional and being recovered? Not the same thing. SIPS Month 2 explores the gap between usable capacity and fuller recovery.
Yes, AI helped me write this
I tried to get (human) help for my AI-assisted work, only to realize I might be asking for too much. Where exactly do debates about ethical AI use leave disability, money, access, and energy?
12 Job boards and resources for disabled and chronically ill workers
Disabled and chronically ill people like us are criminally underemployed in the U.S. These job boards and resources can help change that.
Field Recording: What month one of SIPS taught me
An audio companion to the first monthly field report from the Starr Institute of Physiological Shenanigans.
What month one of SIPS taught me
This imaginary 1930s travel research institute has become the home of all my health data collection and analysis to help me better understand my body with chronic illness.
Field Kit #1 is here! The Chronic Life Observation Kit
A low-burden way to observe your health in context and notice patterns over time.
Apparently I've been busy
I work from bed and use my cane significantly more than I used to, but life is settling down as I adjust to a new reality of physical and mental chronic illness.
Suicide is a control thing
Depression is easy. You just cease to be a functional human being. But choosing to live each day, over and over again? That’s the tough part.
3 lessons I've learned living with major depression
Back once again to share my thoughts on living with depression. It's been a rough six weeks!
Disabled and unemployed. What's next?
Losing a job is destabilizing enough. Disability, chronic illness, benefits, and inaccessible systems can turn it into a full-time administrative crisis.
7 Self-management techniques for disabled and chronically ill workers
Work-life balance doesn't always fit chronic illness. These practical techniques can help you work with fluctuating capacity without treating your body like the problem.
Hiring disabled workers isn't the hard part. Designing workable jobs is.
Inclusive recruiting means little if the job itself is unworkable. Employers need to examine how work gets done and whether people can keep doing it.
